Patient Liaison Committee

In collaboration with the Board, ensure the views of patients are represented within the Society.

Tasks and goals include:

  • Encourage patients to be better informed and involved in decisions about their care.
  • Bring patients and professionals closer together.
  • Raise the awareness of FNDS within the general public and medical world.

Time Commitment:    Two (2) hours a month

For additional information and discuss volunteer opportunities, please contact Mark Edwards at

Questions can also be directed to

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