Privacy Notice

Website Privacy Notice

Last updated May 2021

The Functional Neurological Disorder Society (FNDS) is committed to privacy, recognizing that we are a public association. This statement outlines the policies and procedures concerning information gathering and dissemination practices for our website.

Collecting and Using User Information

The FNDS collects information in different ways from those who access our site. We use this information primarily to provide a customized experience as you use our site and do not share this information with third parties. However, we may disclose personal information collected if we received your permission beforehand or in very special circumstances, such as when we believe that law requires such disclosure or in other special cases described below.

Our site use order forms for customers to request information, products, and services. We collect users’ contact information (e.g., name and e-mail address) and financial information (e.g., account or credit card numbers). Financial information is used to bill the user for products and services and then is deleted from our records in compliance with the Payment Card Industry Data Security Standard (PCI-DSS). Contact information from the order form is used to send orders, contact the user regarding any problems with the order, and to provide the user with information about our association, including promotional materials. Users may opt out of receiving future communications at any time by contacting the Society.

Membership Directory

Current FNDS members' contact information is made available through the Membership Directory. This information is only available to other current FNDS members. Members may opt out of being listed in the Membership Directory; see the Updating User Profile section below.

Disclosure of Personal Information

It is the notice of THE FNDS not to use or share the personal information about users in ways unrelated to the ones described above without also providing you an opportunity to opt out or otherwise prohibit such unrelated uses. However, THE FNDS may disclose personal information about users, or information regarding your use of our site, for any reason if, in our sole discretion, we believe that it is reasonable to do so, including: to satisfy laws, such as the Electronic Communications Privacy Act, regulations, or governmental or legal requests for such information; to disclose information that is necessary to identify, contact or bring legal action against someone who may be violating our Website Terms of Use or other user policies; to operate the site properly; or to protect THE FNDS and our users.

Updating User Profile

Individuals who created an account with the FNDS are able to update or change all personal information provided.  Users can make changes via the My Profile section of the FNDS website or email the Society with updated information.

Opt In/Out of Communications

The FNDS provides individuals the opportunity to opt out of receiving communications from us when we request information about the user. Users can make changes via the My Profile section of the FNDS website or email the Society.

Opt In/Out of Membership Directory 

The FNDS also allows our members to opt out of displaying personal information in the Membership Directory.  Update these preferences via the My Profile section of the FNDS website or email the Society.


Our site has security measures in place to protect the loss, misuse and alteration of the information under our control, but we cannot guarantee that our security measures will prevent third-party "hackers" from illegally obtaining this information.


A "cookie" is a small data file that can be placed on your hard drive when you visit certain websites. On the primary domain, the FNDS uses cookies to give you the best possible experience with the website.  These cookies are also used to ensure we show you content that is relevant to you.  If you continue without changing your settings, you are agreeing to our use of cookies to improve your user experience. 

Note: Refer to your browser (Firefox, Internet Explore, Chrome) help menu to learn how to disable cookies. Understand that if you disable browser cookies or flash cookies, it may interfere with the proper functioning of website services. Most browsers accept cookies automatically, but can be configured not to do so or to notify the user when a cookie is being sent.

Additionally, be aware that if you visit third-party websites where you are prompted to log in or that are customizable, you may be required to accept their cookies. Since third parties and other non-FNDS websites use their own cookies, we cannot control use of these cookies and expressly disclaim responsibility for information collected through them.

Finally, cookies are used to support Google Analytics functionality for website activity tracking. Google Analytics stores information at Google. Read more about Google Analytics privacy and security information.

Links to Other Sites

This site contains links to other websites. The FNDS is not responsible for the privacy practices or content of other websites. We encourage you to read the privacy statements of each website that collects your personally identifiable information.

Changes to This Notice

The FNDS reserves the right to revise, amend, or modify this Privacy Notice, our website Terms of Use, and our other policies and agreements at any time and in any manner. Notice of any revision, amendment, or modification will be posted in accordance with our website Terms of Use.

Cookie Notice

This website uses cookies to deliver to you the best experience possible on our website. By continuing to use this site, you are providing us with your consent to ensure you receive such an experience. View our privacy notice to learn more.